Saturday, June 22, 2013

There is Hope!

June is Scoliosis Awareness Month. I can not contain my joy with the recent X-ray result of As!!! When she returned from her therapy in Scoliosis SOS Clinic, her Cobb's Angle was measured at 30 degrees from 36 degrees. Now she is down to 27 degrees. She has been doing her daily exercises since, and decided not to wear her brace as recommended (23 out of 24 hours in a day) by her doctor here. She only wears her brace at night or whenever she feels like it during the day. I can feel her renewed enthusiasm because of the positive results.

I had doubts about sending her abroad for 1 month to try out something that I was not sure will work out. Plus the cost of the trip! Plus the specialist here said, he does not know of any physical therapy/ activity that can guarantee to reduce the curve. He said we can try to keep the curve where it is through physical therapy, swimming, yoga, etc etc. but he recommends a brace as the best shot. To be fair to the specialist we are seeing, he is a spine surgeon not a scoliosis specialist. Also, he is the only doctor who came up with a plan and the only doctor who recommended an intervention on an a.s.a.p tone.
So what made my husband and I decide to go for the therapy? The fact that our daughter's scoliosis is not life threatening although it is progressive, the solution available for her, which is surgery, is indeed life threatening. There is no such thing as risk free surgery and to have it at such a young age was not something we wanted to see happen to our daughter. Also, there is no such thing as 100% guarantee. So, we spent what we had in the hope of correcting a condition that seems to be going downhill for our 2nd child.
I tried to play down my doubts and encourage my girls to enjoy the vacation, and for my 2nd daughter to go and make friends while she is in therapy and meet friends and family while they are in London and watch shows etc. Here is a post I wrote last year on exactly the same day. And here is another post from last year about a week before they left for therapy.


The Scoliosis SOS Clinic and their therapists are doing a great job. And I am so thankful to them for their dedication, including follow ups and for connecting me to a mother from Brunei when I inquired about any person who has gone through their program. My email exchanges with this angel from Brunei has given me hope and became my source of strength.  Her openness meant the world to me when I felt trapped. Here was someone who understood. Though miles away from me, her emails made me feel like I had a hand to hold as I cried. I wonder if she will ever know what a blessing she is to me. Her daughter, like mine was diagnosed with Adolescent Idiopathic Scoliosis and had therapy ahead of As. She even gave me practical tips about London which my husband found most helpful. I pray for her and her daughter and the rest of her family. I hope to one day meet her.
There is hope for Adolescent Idiopathic Scoliosis and I don't think its wait and see! I think its scoliosis specific therapy! Its far and it costs a lot, but so does a brace, and so does surgery. To say that my daughter has overcome her condition is premature and exaggerated. She still has a curved spine, and it might be something she has to deal for the rest of her life. She still has her brace and she still might need surgery, but as for now there is a ray of hope that she is working effectively away from it and towards a straighter spine.

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