Friday, March 16, 2012

I can't help it!!!

After watching some scoliosis surgery videos I cried and cried! This can not happen!!! Must must must do something!!! I can start by not watching videos that freak me out! But I already have seen a lot!I must do something I can not wait and see...
I also found this...

Very Inspiring. Its so annoying that scoliosis seems to be so common yet I could not find anyone around here who specialize in the conservative treatment of scoliosis. We were prescribed 6 sessions of therapy and the rest we can do at home??!! In a way I should be happy coz thats really cheap compared to the stuff I have been checking online including surgery. But that does not sound like a  plan at all! I am thinking more like summer intensive for young people with scoliosis with matching camp fire and all!!  Oh my my I am not going to lament about my frustration! I will stay positive one step at a time. Wait for the book see what it has to offer...

Thursday, March 15, 2012

Legs!!! I can't believe I missed out on this!

Now that I am writing about AS's Scoliosis I remember my dear girl's leg measurements. During our first visit, the doctor made AS do Adam's Forward Bend Test, also made her lay down and it seemed like her legs were not of the same length. When we went back for therapy the next day, the young 4th year PT student who helped/ assisted AS with her exercises measured her legs and said that the difference is insignificant and wrote it in a notebook. Could it really be? I must check this! I can't believe this is only coming back to me now.
AS has been doing her therapy everyday. We are trying to add a little to it. I think that it does not seem dynamic if she just does what she was given. Since she is growing shouldn't she have a more "growing" exercise too. Just like ballet. One is given the simplest step and you gradually progress to combines stuff. This is just me organizing my thoughts and thinking out loud!
I have lost count of how many times I have read and viewed my dear girl's xrays. I am still trying to figure and picture exactly how it's all working together...

Aside from the heart breaking videos about scoliosis and surgery in you tube, which I will now stop watching (if I can, there are hopeful videos too). I found a number of very very helpful website:
I made a google search and this is the first site I checked out National Scoliosis Foundation, after reading spine curves reaching 143 degrees I do realize that AS curve is mild. But who can tell if it will progress or not?
Scoliosis Nutty - made me feel mainstream and has loads of info.
Scoliosis Systems- this is where I found Spine Core (brace). I was for bracing, but my husband is not. Totally against it! The doctor says the curve is not big enough to recommend bracing. But I did forward the site to him. From this site,  I found out about The Schroth Method- this gave us (me and my husband) so much hope. I bought the book right away and I am now waiting for it now. I can't wait to show it to our doctor!!!

Wednesday, March 14, 2012

Scoliosis, Me coping...

This is where we are now. Going on our 3rd month since being diagnosed. I asked my dear girl AS if it okay with her that I blog about what's going on. I need an outlet. A means of coping. This way I will stop talking about it to everyone I know. Yes I know my dear daughter's scoliosis is not life threatening but I am all worked up about it!
Sleepless nights
Research, Book Purchases, made some emails. It seems like the most far flung person is the only one who cared enough to email me back. Or maybe the other people changed email address already?
Tears and more tears

Positive feeling and thoughts: It will not progress. It will not hamper her in anyway! We will figure out something that she can work with and carry with her forever to help her cope with her condition. After all this is so minor compared to what others have to cope with.
Negative Thoughts like what if it does progress...
I can not let her just go thru surgery with out a fight now. We can not just wait and see.
Here's what I am thinking:  If man was able to go to the moon and back how could we not figure out scoliosis when it is so common. There must be one soul out there who got this figured out in some way other than surgery. Although surgery is not recommended right away.There must be a way to hold this curve in place or better yet correct it?!??????

Tuesday, March 13, 2012

Goodbye Pets

We lost our little kitten, Simpkin! L found her dead in her cage. We buried her and cried. L felt the lost most of all. Then our rabbit died. Tears again...

Lastly, over the weekend my eldest girl, AM found Pebbles- the turtle floating in her bowl. Had a funeral again. We still have our fish and our most beloved Cornelia.

Buntis Day 2012

March 10, Saturday was Buntis Day. Unlike the previous years when it was held in the Mall, this year it was in the Ateneo de Davao Grade School Gym. Also this year's celebration was only half a day, not like the previous years when it was a whole day activity. I hope POGS get their target and make it to the Guinness Book of World Record for the Nationwide Simultaneous Prenatal Class.

Same as the previous years, my little little eager helpers AS, L and NH came along to help me. My eldest girl decided to stay home and rest and prepare her stuff for her ballet recital. My second daughter, AS had the camera and took pictures.
Seated: Super Women from BWC, Janus, Natalie and Lisa. Standing Dr Darleen Estuart Me and NH and L hiding behind me.

My most memorable moment for this year was during the question and answer portion. The moms lined up to ask questions and one young mom asked Dr. Daniega what it means and what can she do coz she was told at the center that they did not pick up the baby's heart tones...
My golly!!! My heart skipped a beat. She was referred right away to the ultra sound area to have a scan. I don't know what happened anymore to her or to her baby. I trust that she and her baby are safe and okay.

I saw one of the moms from my class and we had a nice chat. By 12 noon I had to pack up and take my little helpers home. Then I went to The POD for the first session of Batch 3 2012.

Wednesday, March 7, 2012

My Favorite Pocket Book

Like all my past other favorite pocket books this one swept me off my feet and totally carried me away!!! It is my most reread pocket book of all time and the one I recommend the most. It surpasses all my highly recommended pocket books. There's a whole lot of love in it without mentioning the word love even once! I love it so much I have printed 25 copies of it and put the in clear books!
Newborn Care Until First Week of Life Clinical Practice Pocket Guide by the WHO Western Pacific Region, UNICEF and the Department Of Health 
 Update: The link on top is not working. I do not know why. You can read the pocket guide here.

Here are my favorite parts:
page x Guideline Development - so this pocket book is not some sentimental thing but based on intelligent research and backed by "The DOH, WHO, UNICEF, UNFPA, POGS,  Philippine Society and Newborn Medicine,  Save the Children, the academe and other stake holders." See!!! This book is super. As a teen, some 15 years ago, Jane Austin's Pride and Prejudice thrilled me, just imagine how many Mr Darcy (s) and Elizabeth Benet (s) came together for this? Yeah , I am getting carried away again!
This pocket book has 7 parts.
I. Immediate Newborn Care {The First 90 Minutes}
Oh wow!!! I do have 90 minutes with my baby! No rush to weigh him/her. Personally, I thought I was so lucky even spoiled to be able to hold my baby and breastfeed after birth. Turns out I am not! As its the way to go after all!

II.  Essential Newborn Care from 90 minutes to 6 hours.
Page 7 starts with the Time Band , then Intervention: Give Vitamin K
Oh heck, Vitamin K etc. can wait! I remember 14 years ago, the first time ever in my entire life to ever breastfeed my first baby, was interrupted by Vitamin K shot. And I thought it could not wait. My daughter who was latched on really well wailed! But I thought it could not wait! My healthy beautiful, full term baby girl might bleed to death if we wait! Silly isn't it?

III. Care Prior to Discharge {but after the first 90 minutes}
My favorite line is in Page 11, "do not discharge if baby is not feeding well." What issues would this hold in a private hospital? I am no expert I am just wondering?

IV. Care after Discharge to 7 days
My favorite line page 17, "Reassure her that she has enough breast milk for her baby's needs." and page 18, "Do not give bottles or pacifiers" - Oh need I say more!!!

V. Additional Care- is the part I felt most hesitant to read. The thought that my baby or any baby would need resuscitation is just too spooky. But surprise awaits at page 25! Talk about Kangaroo Mother Care, cup feeding and I think this has the saddest part of the book page 27, When mother and baby are separated...Hu hu hu!!!

VI. Enabling the Environment for some reason it  felt like I was reading a recipe instruction. But there was no mention of food. This is the part of the book that least interested me but I find most reassuring.

VII. Equipment Supplies Maintenance Checklist. Yes this is a checklist! And part of the list states, Page 38, "Delivery bed that supports the woman in a semi-sitting position..." Horray!!!!
Its such a relief for me not to read something like, new sharp, never been used before blade for shaving... Waaaaaaaa!!!
The last 6 pages of the book are core references. This part I still did not get to read. Maybe one day when I am looking for something specific!

I think every parent to be in the entire Philippine archipelago must read this! Its realistic! No added cost to new parents or the birth place. Best for all parties concerned! Keep in mind that the book is written for health professionals and not for parents to be,  which makes it even better!!! You can borrow a copy of this at The POD. Just fill out a library card and you can have this for 15 days. Please make sure you return it on time so we don't have to call you. Please don't loose it so you don't have to buy a new clear book to replace it. To save you this hassle why don't you download and print it yourself and share it to others. I think this pocket book will be part of our county's history. So go spread the love, spread the word, awaken the people ala Noli Me Tangere! Here I am getting carried away again. But seriously this is a must read! Enjoy :)
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